And now for a bit of social responsibility...

Baby Chloe needs your help.

She was born with a rare disorder called Infantile Pompe Disease, and it is normally fatal, as most infants with this disease expire before their first birthday. However, Chloe has defied expectations and has not only persevered, but thrived. Being born in Singapore presents its own special challenges however, as her expenses have spiraled out of control, and there is no assistance available to her and her family. They have suddenly hit the decision that no one should have to make: continue treatment and face bankruptcy, or simply stop treatment because its not affordable. 


To Learn More About Chloe Mah - click HERE

How much is a child's life worth?

The Rare Disorders Society (Singapore), RDSS was set in April 2011 to lobby for government funding to support patients who are suffering from these disorders – only a few cases in Singapore and mostly children below 5.

So far, due to the rarity and infancy on study on these disorders, doctors have not been optimistic but the little survivors have continually surpassed their expectations (Baby Chloe just turned one). Just to share, the cost of a year’s worth of medication can average up to SG$1million in which there are no govt subsidies.

The Rare Disorders Act is supported by many other Asian countries, we hope that SG will join them and provide the necessary subsidies for these few children.


And now... something else that is equally exciting is that now - Singapore based bloggers like myself can help get the message out about the Rare Disorders Society of Singapore and help to spread awareness and help to move this important initiative into the mainstream consciousness. 


You know me... any way i can help excites me! Please read about it below, help if you can, and thank you for your attention. - L

Bloggers band together for Singapore’s First Bloggers Social Responsibility (BSR) Program

Charity have found a new share of voice in the Republic through Singapore’s first Bloggers Social Responsibility (BSR), a new social media spinoff from the conventional Corporate Social Responsibility (CSR).  The BSR, initiated by HTC for the Rare Disorders Society (Singapore) will see Singapore’s top bloggers from all genres come together to champion awareness and raise funds for the rare disease patients – to help alleviate medical costs as rare disorders patients are not subsidised by the government.

The bloggers have pledged to use their positive influence on the blogosphere and are actively keeping themselves up to date on rare disorders in Singapore. Communication efforts will include updates over blogs, Facebook and Twitter.

Quality time will be spent getting acquainted to with the patients and sharing with the public on the A-Zs of rare disorders in Singapore through pictures and videos over new social media.

Contrary to common perceptions that Singaporean Bloggers are too indulgent and have lost touch with the concerns of the less fortunate, the BSR aim to debunk these myths and spotlight on this new initiative which could inspire many more charity driven movements over new social media in the future.